Caregiver Resources

Caregiving can be a wonderful yet also very challenging opportunity. There are a variety of resources available to help someone navigate this path. A few are listed below:

Web Resources

Caregiver Stress and Burnout
The demands of caregiving can be overwhelming, especially if you feel you have little control over the situation or you’re in over your head. If the stress of caregiving is left unchecked, it can take a toll on your health, relationships, and state of mind—eventually leading to burnout. [HelpGuide.org]

Next Step In Care
This website, supported by New York’s United Hospital Fund, contains a series of helpful videos on the topic of caregiving. [nextstepincare.org]

Lotsa Helping Hands
This smart phone app allows the user to create an online, private calendar that can serve all family members as a coordinating mechanism.

Books

Passages in Caregiving: Turning Chaos Into Confidence amazon.com
Author: Gail Sheehy
This guide divides the journey of caregiving into 8 phases from beginning to end. It helps provide resources and encouragement for each of these phases, sharing the trials and fears, but also joys that can be found in caregiving.

 

The Caregiving Trap: Solutions for Life’s Unexpected Changes
Author: Pamela D. Wilson
The Caregiving Trap provides recommendations for exhausted and frustrated caregivers that will help you navigate the challenges of caring for a loved one and help you replace feelings of guilt, sadness, and fatigue with calm and certainty. The companion website (www.thecaregivingtrapbook.com) contains helpful information and a podcast series that answers lots of questions caregivers might have.

The Four Things That Matter Most: A Book About Living amazon.com
Author: Ira Byock, M. D.
Four simple phrases — “Please forgive me,” “I forgive you,” “Thank you,” and “I love you”—carry enormous power to mend and nurture our relationships and inner lives. These four phrases and the sentiments they convey provide a path to emotional wellbeing, guiding us through interpersonal difficulties to life with integrity and grace.

How to Care for Aging Parents
This book and associated website is an excellent resource for those whose parents are aging and facing difficult decisions. The associated website (https://careforagingparents.com/) has a downloadable “Caregiver’s Organizer,” with helpful worksheets.

 

Keeping Love Alive as Memories Fade: The 5 Love Languages and the Alzheimer’s Journey  amazon.com
Authors: Debbie Barr, Edward Shaw, and Gary Chapman
This 240-page book provides readers with practical steps for the caregivers and care receivers to cultivate an emotional connection amid memory loss.